Marfan Syndrome Support Group

This initiative provides assistance to individuals affected by Marfan Syndrome and their relatives, facilitating meetings as necessary. It includes referrals to a national organization and connections to others with Marfan Syndrome for emotional support. Marfan Syndrome is a hereditary disorder impacting connective tissues, bones, muscles, ligaments, and the skeletal system, characterized by symptoms such as an unsteady gait, a tall and slender physique with elongated limbs, increased joint flexibility, flat feet, rounded shoulders, dislocated lenses, and a compromised aorta. Services are available in English.

Intake Procedure: Please reach out for details on the intake process.